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一个原型协议,用于评估现实世界的数据集,使用一个结构化的电子健康记录在格洛科马

Sakari Sulonen¹, Sanna Leinonen^1,2, Eemil Lehtonen¹

¹Faculty of Medicine and Health Technology, Tampere University, Tampere, Finland.

Acta ophthalmologica

|September 27, 2023

概括

一个新的青光眼电子医疗记录 (EHR) 系统捕获真实世界的数据,使得诊所之间的比较. 该系统有效地记录了视神经头部,视网膜神经纤维层和视野测试的临床评估.

科学领域:

眼科医生眼科眼科
医疗信息学医疗信息学
公共卫生公共卫生

背景情况:

眼的管理需要持续的监测和数据收集.
电子医疗记录 (EHR) 提供了在专业诊所结构化数据捕获的潜力.
现实世界的数据对于评估临床指南和护理途径的有效性至关重要.

研究的目的:

报告从原型眼特异性结构化EHR的第一年的真实世界数据.
建立监测和评估日复一日格洛科马护理的基线.
评估结构化电子健康记录数据对格洛科马管理的可行性和有用性.

主要方法:

2019年,芬兰Tays眼科中心实施了一项针对青光眼的特殊电子眼科诊断系统.
经过培训的护士输入了患者数据,而格劳科马专家则对这些数据进行了审查.
根据芬兰当前护理指南,对视神经头部 (ONH),视网膜神经纤维层 (RNFL) 和视野 (VF) 的评估采用"三分之二"规则.

主要成果:

在95%-100%的眼睛中记录了ONH,RNFL和VF的临床评估.
与RNFL (33%) 和VF测试 (30%) 相比,视神经头部 (ONH) 更频繁地被评估为玻璃眼 (44%),而RNFL (33%) 和VF测试 (30%) 更频繁.
在35%的"≥2/3绿眼组"中发现了渐进性变化,而在其他组中为2%-9%. 平均眼内压力 (IOP) 为15mmHg,目标眼内压力为17mmHg,记录在94%的眼睛中.

结论:

结构化的EHR有助于在不同诊所和不同人群中比较现实世界眼病数据.
与英国数据集相比,泰斯眼科中心的青光眼疑似访问比例较低,测试间隔较长.
开发的EHR系统为标准化的青光眼护理监测和研究提供了有价值的工具.

关键词:

电子健康记录电子健康记录玻璃眼 glaucoma 玻璃眼玻璃眼玻璃眼玻璃眼现实世界的数据数据.报告协议报告协议

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