父母对喘青少年医疗过渡的经验和看法:一种定性研究
Hyekyun Rhee1, Lindsay Batek2, Lynn Rew1
1School of Nursing, University of Texas at Austin, 1710 Red River St., Austin, TX 78712, USA.
Children (Basel, Switzerland)
|September 28, 2023
概括
患有喘的青少年的父母在医疗保健过渡期间面临重大挑战. 早期的培训和支持对于青少年和家长来说都至关重要,在这个关键时期有效地管理喘.
科学领域:
- 儿科医疗保健 儿科医疗保健
- 青少年医学 青少年医学
- 慢性病管理 慢性病管理
背景情况:
- 青春期是从儿科到成人医疗保健过渡的关键时期.
- 父母对于帮助患有慢性病的青少年度过这种过渡期至关重要.
- 对于父母在医疗保健转型期间的经历和需求的理解有限.
研究的目的:
- 探索家长对患有喘的青少年医疗保健过渡的经验和看法.
- 识别与过渡期青少年喘管理相关的家长关切和需求.
主要方法:
- 这是一项定性研究,涉及19名患有喘的16-17岁青少年的母亲.
- 通过重点小组和个人访谈收集的数据.
- 定性数据的内容分析.
主要成果:
- 父母报告了关于青少年过渡准备和喘自我管理的负面情绪和担忧.
- 确定了青少年和家长对早期过渡培训的重大需求.
- 医疗保健转型中的挑战会对父母产生负面影响,特别是当青少年缺乏独立喘管理技能时.
结论:
- 父母需要预期的指导和技能,以应对不断变化的角色和共同的喘护理责任.
- 对青少年和家长的干预和支持策略对于成功的医疗保健过渡至关重要.
- 解决家长的需求对于改善青春期喘护理结果至关重要.
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