患者的情感旅程与埃索诺菲尔性食道炎的患者
Helen Larsson1,2, Mary J Strobel3, Eduardo Perez-Guagnelli4
1Department of Otorhinolaryngology, NU-Hospital Group, Trollhättan, Sweden.
Advances in therapy
|September 28, 2023
概括
患有乙性食道炎 (EoE) 的患者在整个旅程中,从诊断到治疗,都会经历显著的情绪困扰. 提高对这些情绪影响的认识对于更好的患者护理和支持至关重要.
科学领域:
- 胃肠病学 胃肠病学
- 心理学 心理学 心理学
- 患者体验研究 研究研究
背景情况:
- 生性食道炎 (EoE) 是一种慢性疾病,影响生活质量.
- 关于EoE患者的情感旅程和未满足需求的数据有限.
- 了解情绪轨迹对于全面的患者护理至关重要.
研究的目的:
- 调查患者旅程的所有阶段对EoE的情感影响.
- 为了确定EoE个体所经历的未满足的情感需求.
- 告知医疗保健提供者关于EoE的心理负担.
主要方法:
- 横截面的,定性研究设计.
- 半结构化,与来自八个国家的21名成年EDE患者进行一对一的采访.
- 探索患者在寻求护理,诊断和治疗前阶段的经验.
主要成果:
- 患者报告一系列的负面情绪,包括混乱,恐惧,丧和孤独在早期阶段.
- 诊断过程引起了大量的愤怒和丧,因为它的漫长和繁的性质.
- 诊断和有效的治疗带来了缓解,幸福,信心和控制感.
结论:
- 在整个医疗保健过程中,EoE显著影响患者的情感福祉.
- 患者和医生缺乏意识会加剧消极的情绪体验,特别是在疾病早期.
- 强调EoE的情感影响对于改善患者支持和提高疾病意识至关重要.
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