评估年轻癌症患者治疗结束时的护理
Eve Twivy1, Helen Griffiths2, Matthew Td Knight1
1Oxford Institute of Clinical Psychology Training and Research, Oxford Health NHS Foundation Trust, University of Oxford, UK.
Clinical child psychology and psychiatry
|September 29, 2023
概括
年轻的癌症患者在治疗结束后往往缺乏支持. 这项研究强调了他们在过渡到日常生活期间需要更好的准备,持续的护理和心理支持.
科学领域:
- 儿科瘤学 儿科瘤学
- 青少年健康 青少年健康
- 癌症的生存率 癌症的生存率
背景情况:
- 文献表明,年轻癌症患者在治疗后的支持方面存在潜在的缺陷.
- 本次服务评估调查了在英国儿童医院结束癌症治疗的青少年的需求和经验.
研究的目的:
- 探索从积极癌症治疗过渡到后续护理的年轻人的需求和经验.
- 为儿童癌症幸存者提供治疗后支持服务的改进提供信息.
主要方法:
- 与9名年龄在13-18岁的参与者进行了半结构面试.
- 专题分析被用来分析关于结束癌症治疗的经验的采访数据.
主要成果:
- 出现了四个主要主题:关于停止治疗的信息缺乏 ("处于黑暗中"),医院支持的丧失 ("与医院分离"),管理长期影响 ("癌症后果") 和重新融入日常生活 ("恢复正常生活").
结论:
- 建议包括加强对治疗结束的准备,明确沟通持续护理,提供资源包和获得同行支持的机会.
- 建议在后续预约中实施治疗结束多学科审查和专注于情绪表达的时间,以满足特定的治疗后需求.
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