解决青少年异常性关节炎中过渡期护理的未满足需求
Nihal Şahin1, Hafize Emine Sönmez1, Nuray Aktay Ayaz2
1Department of Pediatric Rheumatology, Kocaeli University, Faculty of Medicine, Kocaeli, Turkey.
Rheumatology (Oxford, England)
|September 29, 2023
概括
本次审查强调了改善青少年无形性关节炎 (JIA) 的年轻人过渡计划的迫切需要. 目前的计划缺乏标准化的指导方针,这影响了患者在过渡到成人护理期间的准备和满意度.
科学领域:
- 类风湿病学 类风湿病学
- 儿科风湿病学 儿科风湿病学
- 医疗保健服务研究 医疗服务研究
背景情况:
- 将患有风湿性疾病的儿科患者转移到成人护理是必不可少的,但具有挑战性.
- 缺乏确定的最佳实践指南,阻碍了有效的过渡期护理.
- 社会经济和文化差异使通用准则的制定变得复杂.
研究的目的:
- 综合分析关于青少年白痴性关节炎 (JIA) 过渡计划的文献.
- 在JIA过渡过程中识别未满足的要求和特定需求.
- 强调优化这群人群的护理过渡的重要性.
主要方法:
- 系统的文献审查遵循叙事审查指南.
- 在2023年1月之前搜索了知名的数据库 (科学网,Scopus,MEDLINE/PubMed)
- 分析了34项研究,重点关注患者的准备,计划的有效性和结果.
主要成果:
- 12项研究评估了青少年和年轻人的过渡准备程度.
- 18项研究评估了结构化过渡计划 (坚持,满意度) 的有效性.
- 4项研究调查了JIA患者在过渡期间的与疾病相关的结局.
结论:
- 显然需要在风湿病学中进行结构化的过渡性护理.
- 在JIA过渡的最佳实践指南或评分系统上没有共识.
- 解决未得到满足的需求对于制定有效,普遍适用的过渡计划至关重要.
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