了解英国自闭症成年人的诊断后支持优先事项:联合制作的修改后的Delphi研究
Susanna Crowson1, Daniel Poole1, Kelly Scargill1,2
1The University of Sheffield, UK.
Autism : the international journal of research and practice
|September 30, 2023
概括
自闭症成年人需要更好的诊断后支持,包括当地服务和训练有素的专业人员. 主要优先事项包括处理晚期诊断和个性化计划,以获得更好的结果.
科学领域:
- 神经发育障碍 神经发育障碍
- 自闭症谱系障碍研究研究
- 支持成年自闭症的支持
背景情况:
- 越来越多的成年人接受自闭症诊断.
- 报告了诊断的积极影响,但尚未满足的支持需求.
- 挑战包括长时间的评估等待和诊断后服务不足.
研究的目的:
- 确定自闭症成人诊断后的具体支持需求和优先事项.
- 与自闭症成年人共同设计研究,以确保相关性.
- 为开发更有效的支持系统提供信息.
主要方法:
- 与10名自闭症成年人共同设计的研究.
- 通过三个问卷从43名自闭症成年人 (被诊断为18岁以上) 收集定量数据.
- 第四个问卷调查了139名在成年后被诊断为自闭症的成年人.
主要成果:
- 确定了主要优先事项:获得当地支持,专业培训,处理迟诊断的影响,首选的沟通方法和个性化支持计划.
- 自闭症成年人高度重视可访问的当地服务.
- 接受自闭症培训的专业人员的重要性以及灵活的沟通选择.
结论:
- 目前对英国自闭症成年人的支持往往不合适.
- 在被诊断为自闭症后,有很大需要量身定制,可访问和以人为中心的支持.
- 解决这些优先事项可以改善自闭症成年人的生活质量.
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