青年和家庭参与开发一个简单的语言试验结果的沟通工具:CommuniKIDS
Ami Baba1, Dawn P Richards2, Maureen Smith3
1Child Health Evaluative Sciences, The Hospital for Sick Children Research Institute, Toronto, ON, Canada.
Research involvement and engagement
|September 30, 2023
概括
与儿科参与者及其家人分享临床试验结果至关重要. 与青少年和家长一起开发的CommuniKIDS模板提供了专门针对儿科的简单语言摘要,以改善沟通.
科学领域:
- 临床试验方法和患者参与.
- 儿科研究和参与者沟通.
- 健康素养和知识翻译在研究中.
背景情况:
- 儿科临床试验依赖于儿童,青少年及其家人的自愿参与.
- 与参与者分享试验进展和结果经常被忽视,尽管参与者的愿望和道德论点.
- 对于有效地向年轻参与者及其家人传达试验结果的指导是有限的.
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