[评估多发性硬化症患者在疾病修饰治疗中的遵从性和患者途径]
Klotild Mátyás1, Tamás Bobál2, Zsolt Abonyi3
1Heves Vármegyei Markhot Ferenc Oktatókórház és Rendelőintézet, Eger.
概括
匈牙利多发性硬化症 (MS) 患者表现出良好的治疗遵从性,但获得医疗保健的困难给患者的治疗途径带来了重大挑战. 提高公众对MS症状的认识至关重要.
科学领域:
- 神经学 神经学
- 公共卫生 公共卫生
背景情况:
- 匈牙利的多发性硬化症 (MS) 治疗率似乎低于一些邻国.
- 调查这种差异背后的原因对于改善患者护理至关重要.
研究的目的:
- 在匈牙利MS患者中分析患者对疾病修饰疗法 (DMT) 的遵守.
- 评估匈牙利MS患者的患者旅程,包括诊断和医疗保健准入.
主要方法:
- 从国家健康保险基金 (NHIF) 对5441名多发性硬化患者 (2014年7月 - 2021年2月) 匿名处方数据的分析.
- 通过采访对MS患者旅程的定量和定性评估.
主要成果:
- 匈牙利的多发性硬化症患者表现出对DMT的高度遵守,超过了国际和其他疾病治疗数据.
- 患者采访显示,在获得公共医疗保健方面存在重大困难,诊断延迟涉及3-5名医生.
- 多发性硬化中心得到了积极的反;患者信任和感觉到医生的同情,但希望有更多的时间来讨论生活方式.
结论:
- 尽管患者顺服,但匈牙利的患者途径不足于最佳,这有助于降低MS整体治疗率.
- 对于专门从事多发性硬化症的神经科医生来说,建议为非专业医生提供增强培训.
- 公众宣传活动,类似于对于中风的宣传活动,可以提高对MS症状的识别和管理.
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