疾病意识和治疗偏好在白风:一个横截面研究在中国
Xiaolin Zhang1, Adnan Falak Naz1, Ling Jiang1
1Department of Dermatology, Third Xiangya Hospital, Central South University, 138 Tongzipo Road, Changsha, Hunan, 410013, P.R. China.
Acta dermato-venereologica
|October 3, 2023
概括
中国的许多白风患者缺乏足够的疾病知识,影响了他们的生活质量. 提高认识和考虑患者偏好是改善治疗坚持和减少疾病负担的关键.
科学领域:
- 皮肤病学 皮肤病学
- 公共卫生 公共卫生
- 卫生经济学 卫生经济学
背景情况:
- 关于中国白风患者的认识和治疗偏好存在有限的数据.
- Vitiligo 严重影响患者的生活质量,需要量身定制的医疗保健方法.
研究的目的:
- 调查中国白风患者的疾病意识,治疗偏好和支付意愿.
- 使用皮肤病生命质量指数 (DLQI) 评估生活质量,并确定影响患者决策的因素.
主要方法:
- 一项基于问卷的横截面研究,涉及中国307名白风患者.
- 数据收集包括疾病知识评估,治疗偏好评估,支付意愿指标和DLQI得分.
主要成果:
- 44.7%的患者表现出不充分的白风知识,特别是那些在农村地区或教育水平较低的患者.
- 平均DLQI得分为4.86,表明对生活质量的影响中等,女性更高.
- 局部药物,光疗和全身疗法是首选的治疗方法;只有27.7%的人愿意为缓解支付超过10,000元人民币.
结论:
- 不足够的疾病知识与更高的疾病负担相关.
- 提高患者意识和纳入治疗偏好对于改善患者的坚持和治疗结果至关重要.
- 教育,收入,损伤位置和考虑皮肤移植等因素会影响支付意愿.
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