转变的年轻人与脊柱裂变:挑战和成功的道路
Joshua D Roth1, Matthew A Miller2, Joseph O O'Neil2
1Department of Urology, Riley Hospital for Children, Indiana University School of Medicine, United States.
Journal of pediatric urology
|October 3, 2023
概括
脊椎裂 (SB) 护理的进步使得更多的成年人能够活得更长,需要向成年人护理模式过渡. 这种过渡在神经认知功能,性健康和SB成年人的神经性膀管理方面带来了独特的挑战.
科学领域:
- 医学的进步和终身护理对于脊柱裂患者.
背景情况:
- 医学进步使得脊柱裂 (SB) 患者能够活到成年.
- 这种人口变化需要从儿科到成人医疗保健模式的过渡.
研究的目的:
- 探索与将SB护理转移到成年模型相关的挑战.
- 在过渡期间调查性功能和性功能障碍的新出现的问题.
- 为了解决管理神经性膀和泌尿病后果的困难,在成年人与SB.
主要方法:
- 文献综述总结了SB护理过渡中的挑战.
- 专家总结强调了SB管理的特定领域的挑战.
主要成果:
- 过渡性SB护理因神经认知和神经心理问题而复杂.
- 性功能是过渡的一个关键方面,需要注意.
- 由于人口异质性和之前的外科手术结果,在SB的成年人中管理神经性膀是复杂的.
结论:
- 确保为所有SB患者提供适当的,基于证据的终身护理至关重要.
- 解决神经认知缺陷,性健康和泌尿管理是成功SB护理过渡的关键.
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