患有自闭症谱系障碍的兄弟姐妹的经验:一个系统审查协议
Jiří Kantor1,2, Alžběta Smrčková1,2, Véronique de Goumoëns3,4
1Institute of Special Educational Studies, Faculty of Education, Palacký University Olomouc, Olomouc, Czech Republic.
JBI evidence synthesis
|October 4, 2023
概括
本综述探讨了自闭症谱系障碍 (ASD) 个体的神经类型兄弟姐妹的经历. 研究结果强调,需要为这些兄弟姐妹提供更好的支持系统,他们经常面临独特的挑战和奖励.
科学领域:
- 心理学 心理学 心理学
- 家庭研究 家庭研究
- 残疾人研究 研究残疾人研究
背景情况:
- 自闭症谱系障碍 (ASD) 显著影响家庭动态,影响沟通和社会互动.
- 患有自闭症的人的兄弟姐妹会经历一系列的结果,从增强的同情心到增加欺凌风险.
- 神经典型的兄弟姐妹往往缺乏足够的支持,导致许多国家的边缘化.
研究的目的:
- 质量综合自闭症谱系障碍患者的神经类型兄弟姐妹的生活经验.
- 确定ASD影响家庭中的兄弟姐妹所面临的共同主题和挑战.
- 为这个群体提供有针对性的支持干预措施的发展提供信息.
主要方法:
- 遵循JBI方法的定性系统审查.
- 在多个数据库 (MEDLINE,CINAHL,PsycINFO等) 中进行全面的文献搜索. 和灰色文学.
- 包括研究无论年龄,性别,性别,关系长度,国家或背景,与英语摘要.
主要成果:
- 综述综合了不同兄弟姐妹的经验,包括积极的适应和重大困难.
- 确定的主题可能包括情绪影响,社会挑战和照顾者的角色.
- 结果强调了兄弟姐妹经历的异质性和需要个性化的支持.
结论:
- 患有自闭症个体的神经典型兄弟姐妹需要定制的支持来导航他们独特的家庭环境.
- 进一步的研究应该集中在开发和评估旨在增强兄弟姐妹福祉的干预措施上.
- 解决兄弟姐妹的需求对于ASD的整体家庭支持至关重要.
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