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在患有慢性病时,改变生活的过程:一种定性研究
Christina E Frandsen1,2,3,4, Hans Dieperink1,2, Bettina Trettin2,5
1Department of Nephrology, Odense University Hospital, Odense, Denmark.
Journal of renal care
|October 4, 2023
概括
慢性病 (CKD) 显著改变了家庭动态和日常生活,影响了角色和身份. 患者和家人在面临情感挑战和对正常生活的渴望中进行治疗选择.
科学领域:
- 腎臟病學 (nephrology) 是一種醫學專業.
- 社会学 社会学 社会学
- 心理学 心理学 心理学
背景情况:
- 慢性病 (CKD) 需要对患者及其家人进行重大生活方式调整.
- 提前护理计划 (ACP) 对于了解健康状况,护理选择和个人偏好至关重要.
研究的目的:
- 探索CKD患者及其家属关于日常生活的经历.
- 了解CKD患者和家人如何做出治疗选择的经验.
主要方法:
- 使用现象学-解说学方法进行定性,探索性研究.
- 与12名CKD患者和8名家庭成员进行个人半结构面试.
- 数据分析基于Ricoeur的解释理论.
主要成果:
- 确定的一个中心主题是"生活变化过程中的家庭动态".
- 副主题包括"生活在等待的普通生活中"",愿意分享的困境"和"被遗弃的感觉".
结论:
- 慢性瘤会影响家庭角色,身份以及维持正常生活的愿望.
- 在家庭中对CKD的不同管理可能会导致悲伤,丧和恢复力丧失.
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