[癌症患者是否可以获得有关社会权利的信息?]
Fernanda Guedim Batista1, André Salem Szklo2
1Associação Feminina de Prevenção e Combate ao Câncer, Juiz de Fora, Brasil.
Cadernos de saude publica
|October 4, 2023
概括
许多巴西癌症患者不知道他们的法律权利,尽管法律旨在帮助支付治疗费用. 加强信息获取对于在法律框架内支持癌症患者至关重要.
科学领域:
- 在瘤学瘤学.
- 公共卫生 公共卫生
- 卫生法 法律 卫生法
背景情况:
- 巴西立法为癌症患者提供法律权利,以帮助治疗和减少经济负担.
- 了解这些权利对于患者获得可用的支持和福利至关重要.
研究的目的:
- 确定在巴西统一国家卫生系统 (SUS) 中心接受治疗的癌症患者对15项特定法律权利的认识水平.
- 根据每个权利的患者子组来分析认识.
主要方法:
- 一项研究采访了2022年3月至7月在巴西米纳斯吉拉斯州ASCOMCER的62名成年癌症患者.
- 评估了患者对15个与他们的病情和资格相关的法律权利的认识.
主要成果:
- 虽然100%的符合条件的患者知道"处理程序中的优先权"等某些权利,但只有50%以上的人知道"疾病福利" (70.6%).
- 对包括"免财产税"和"退休所得税豁免"在内的权利的认识非常低 (低于5%).
- 大多数患者 (91.9%) 通过SUS接受治疗,其中许多患者的收入和教育水平较低,突出了获取信息的潜在障碍.
结论:
- 在巴西,癌症患者对其法律权利的认识存在重大差距.
- 改善有关患者权利的信息传播对于加强综合护理和确保公平获得法律规定的福利至关重要.
- 法律支持和患者教育是癌症护理的重要组成部分,特别是对于弱势群体.
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