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巴西版本的CHOP INTEND尺度:跨文化适应和验证

Renalli Manuella Rodrigues Alves^1,2, Alessandra Paula de Melo Calado^3,4, Vanessa Van Der Linden^3,4

¹Instituto de Medicina Integral Professor Fernando Figueira, Pós-graduação em Saúde Integral, Recife PE, Brazil.

Arquivos de neuro-psiquiatria

|October 4, 2023

概括

费城儿童医院婴儿神经肌肉疾病测试 (CHOP INTEND) 的巴西葡萄牙语版本是评估脊髓肌肉缩 (SMA) I型婴儿运动功能的有效和可靠工具.

科学领域:

神经学神经学
儿科儿科儿科
遗传学是一个遗传学.

背景情况:

脊椎肌肉缩 (SMA) 是一种罕见的遗传疾病,导致婴儿肌肉逐渐衰弱.
第一种类型的SMA是最严重的形式,显著影响运动功能.
现有的运动功能评估工具对于严重神经肌肉衰弱的婴儿有局限性.

研究的目的:

将费城儿童医院的神经肌肉疾病婴儿测试 (CHOP INTEND) 翻译成巴西葡萄牙语,并从文化上调整.
验证巴西版本的CHOP INTEND用于评估SMA型I的婴儿.
确保翻译的工具适合巴西人口.

主要方法:

在CHOP INTEND中进行了翻译,合成,逆向翻译和专家委员会审查.
最终的巴西版本在13名被诊断为SMA型I的婴儿身上进行了测试.
评估了翻译规模的内容有效性和评级者之间的可靠性.

主要成果:

翻译过程考虑了语义,结构,成语和文化等价性.
协议率超过0.8,整体内容有效性指数为0.98.
评价者之间的可靠性非常高,类内相关系数为0.998.998.

结论:

巴西版本的CHOP INTEND表现出与原始版本的语义和技术等价性.
翻译尺度是一种有效和可靠的工具,用于评估巴西SMA型I婴儿的运动功能.
这种经过验证的工具将有助于在巴西临床评估和管理SMA I型.

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