收集,使用和传输敏感健康数据的伦理准则:新加坡修改后的Delphi政策过程的结果
Tamra Lysaght1, Hui Yun Chan2, James Scheibner3
1Centre for Biomedical Ethics, Clinical Research Centre, Yong Loo Lin School of Medicine, National University of Singapore, Level 2 Block MD11, 10 Medical Drive, Singapore, 117597, Singapore.
BMC medical ethics
|October 4, 2023
概括
数字健康技术 (DHT) 旨在将护理转移到社区,但需要道德数据处理. 这项研究制定了国际DHT研究的伦理准则,解决数据治理缺陷.
科学领域:
- 数字健康数字健康
- 医疗信息学 医疗信息学
- 生物伦理学生物伦理学
背景情况:
- 数字健康技术 (DHT) 旨在分散医疗保健,将初级保健从医院转移到社区.
- 这种转变需要跨境收集,使用和转移大量敏感的健康数据集.
- 目前的法律框架落后于DHT的进步,造成了数据治理挑战.
研究的目的:
- 解决DHT数据处理的法律途径的差距.
- 为参与国际DHT合作的研究人员制定道德准则.
- 在数字健康中指导敏感健康数据的伦理收集,使用和转移.
主要方法:
- 使用了修改后的Delphi政策流程.
- 利益相关者参与了健康数据道德和治理的审议.
- 这种方法有助于为道德准则建立共识.
主要成果:
- 为指导DHT研究,制定了一项伦理准则.
- 该守则涉及健康数据伦理和治理的关键组成部分.
- 该研究确定了数字健康数据未来研究的领域.
结论:
- 伦理守则对于负责任的DHT开发和国际合作至关重要.
- 解决数据治理缺口对于实现DHT在社区护理中的潜力至关重要.
- 需要进一步的研究来完善数字健康数据管理中的伦理实践.
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