为生活在较罕见的痴呆症中的人们提供支持
Mary Pat Sullivan1, Paul M Camic2, Emma Harding2
1Faculty of Education and Professional Studies, School of Social Work, Nipissing University, North Bay, ON, Canada. marypat.sullivan@nipissingu.ca.
BMC geriatrics
|October 6, 2023
概括
在普遍的痴呆症护理中,对罕见痴呆症的支持往往被忽视. 这项研究揭示了针对罕见痴呆症提供量身定制支持的新兴社会空间,突出了改善护理的局限性和可能性.
科学领域:
- 神经科学是一个神经科学.
- 老年学是一门学科.
- 社会科学 社会科学 社会科学
背景情况:
- 对于各种神经退行性疾病及其特异性症状在痴呆症护理部门的认识有限.
- 实现准确诊断和获得适当的诊断后支持所面临的挑战会影响痴呆症患者及其家属.
- 本研究的重点是罕见痴呆症在更广泛的痴呆症护理和支持交付背景下.
研究的目的:
- 检查罕见痴呆症在痴呆症护理和支持的社会群体和组织结构中的位置.
- 分析影响罕见痴呆症患者提供护理和支持的演讲结构.
- 确定加强罕见痴呆症支持系统的局限性和机会.
主要方法:
- 采用情境分析方法,检查加拿大,英格兰和威尔士的公共文件和组织网站.
- 进行了专业调查,以收集有关在服务点提供护理和支持的见解.
- 数据收集和分析同时进行,包括创建分析地图.
主要成果:
- 发现揭示了支持行动和话语表现的位置结构,突出了当前支持景观的局限性.
- 该研究确定了更灵活,更定制的罕见痴呆症支持的可能性.
- 观察到普遍和定制支持位置之间的紧张关系,这有助于复杂的罕见痴呆症护理.
结论:
- 为罕见痴呆症提供支持的社会世界往往被普遍的痴呆症支持框架所掩盖.
- 这些支持举措在更广泛,更强大的痴呆症护理领域内进行谈判.
- 围绕罕见痴呆症的不断变化的组织和话语表明,受影响个体的新社会空间正在出现.
相关概念视频
01:30Dementia
124
Dementia is a collective term for cognitive disorders primarily affecting memory, thinking, and reasoning. It is not a specific disease but a syndrome, with Alzheimer's disease being the most common cause, accounting for approximately 60-80% of cases. Other types include vascular dementia, Lewy body dementia, and frontotemporal dementia. Dementia affects millions worldwide, particularly older adults, though it is not a normal part of aging.
The progression of dementia is generally gradual....
The progression of dementia is generally gradual....
124
01:26Alzheimer's Disease: Overview
506
Alzheimer's Disease (AD) is a continually advancing neurodegenerative disorder, distinguished by escalating memory loss, cognitive dysfunction, and dementia. The disease unfolds in three stages: preclinical, mild cognitive impairment (MCI), and dementia. Its onset is insidious, and the progression gradual, with the cause not well explained by other disorders.
The clinical diagnosis of AD hinges on the presence of memory and other cognitive impairments. Biomarkers, such as changes in Aβ...
The clinical diagnosis of AD hinges on the presence of memory and other cognitive impairments. Biomarkers, such as changes in Aβ...
506
01:22Alzheimer's Disease: Treatment
212
Alzheimer's Disease (AD), a neurodegenerative disorder, is pathologically identified by amyloid plaques and neurofibrillary tangles composed of tau protein. AD pharmacotherapy aims to manage cognitive symptoms, delay disease progression, and treat behavioral symptoms. The treatment is primarily symptomatic and palliative, with no definitive disease-modifying therapy available. Cholinesterase inhibitors, including donepezil (Aricept), rivastigmine (Exelon), and galantamine (Razadyne), are...
212
01:29Intellectual Disability
61
Intellectual disability (ID) is a neurodevelopmental condition characterized by deficits in intellectual and adaptive functioning that manifest during the developmental period. This condition encompasses challenges in reasoning, memory, problem-solving, and learning, accompanied by impairments in everyday life skills, such as communication, self-care, and social interactions. Intellectual disability affects approximately 1% of the population in the United States, impacting an estimated 5...
61
01:25Continuing Care
1.5K
Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
1.5K
01:25Learning Disabilities
157
Learning disabilities are cognitive disorders caused by neurological impairments that affect cognitive functions like language and reading, without indicating overall intellectual or developmental challenges. These disabilities differ from global intellectual or developmental disabilities as they are limited to distinct cognitive functions. Common learning disabilities include dysgraphia, dyslexia, and dyscalculia, each of which impacts unique aspects of learning.
Dyslexia
Dyslexia is a...
Dyslexia
Dyslexia is a...
157