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慢性髓性白血病:一种定性采访研究,从患者和从业人员的角度探讨疾病的影响
Ann Hewison1, Eve Roman1, Alexandra Smith1
1Epidemiology and Cancer Statistics Group, Department of Health Sciences, Seebohm Rowntree Building, University of York, York, YO10 5DD, United Kingdom.
患有慢性髓性白血病 (CML) 的患者在一生中对患者产生重大影响. 了解患者的经验和影响的媒介,如知识和社会支持,对于改善护理至关重要.
科学领域:
- 血液学 血液学 血液学
- 在瘤学瘤学.
- 质量健康研究 质量健康研究
背景情况:
- 慢性髓性白血病 (CML) 治疗的进步需要了解患者的长期经验.
- 本研究探讨了从患者和医疗保健从业人员的角度来看,CML对终身影响.
研究的目的:
- 研究慢性髓性白血病 (CML) 对患有该疾病的个体的多方面的影响.
- 探索患者和医疗保健从业人员对CML生活经验的看法.
- 为了确定介于CML及其治疗影响的因素.
主要方法:
- 使用专题分析进行定性研究.
- 采访了17名新诊断为CML的患者和13名医疗保健从业人员.
- 数据收集在英国的血液病恶性疾病研究网络.
主要成果:
- 两个主要主题出现了:"疾病和治疗的重大影响"和"疾病和治疗影响的调解者".
- 患者报告说,知识,社会支持和医疗保健系统质量介导的广泛影响.
- 实践者虽然支持,但有时低估了CML与急性白血病相比的影响,可能会影响副作用讨论.
结论:
- 慢性髓性白血病 (CML) 可以深刻影响个人一生.
- 对患者影响和调解因素的更好理解可以改善临床护理.
- 关于CML影响的全部程度的公开讨论对于患者的福祉至关重要.
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