关于炎症性肠病患者信息和支持需求以及获取信息来源的专家意见:德尔菲共识研究
Narges Norouzkhani1, Ali Bahari2, Javad Shokri Shirvani3
1Department of Medical Informatics, Faculty of Medicine, Mashhad University of Medical Sciences, Mashhad, Iran.
Frontiers in psychology
|October 9, 2023
概括
这项研究使用专家共识确定了炎症性肠病 (IBD) 患者的关键信息和支持需求. 德尔菲方法改进了这些需求和信息来源,最终形成了一个全面的问卷.
科学领域:
- 胃肠病学 胃肠病学
- 患者支持 患者支持
- 健康信息管理 管理健康信息
背景情况:
- 炎症性肠病 (IBD) 给患者带来了独特的挑战.
- 了解患者需求对于有效的护理和支持至关重要.
- 现有的文献突出了IBD患者信息和支持资源的差距.
研究的目的:
- 确定和定义炎症性肠病 (IBD) 患者的信息和支持需求.
- 确定获得IBD患者健康信息的最有效来源.
- 通过结构化的方法论,就这些需求和来源达成专家共识.
主要方法:
- 采用了三轮专家德尔菲共识意见方法.
- 最初的范围审查确定了128个信息需求,支持需求和信息来源的潜在项目.
- 问卷分发给多学科专家,根据反进行代改进.
主要成果:
- 德尔菲过程将最初的128个项目改进为100个项目问卷.
- 有意义的项目被遗漏,并在信息需求,支持需求和信息类别的来源中添加.
- 在专家中达成了相当大的一致性 (肯德尔的W 0.325-0.344).
结论:
- 该研究成功地建立了关于IBD患者关键信息和支持需求的共识.
- 确定了一套精细的信息来源,对于患者教育和护理至关重要.
- 完成的100项调查问卷代表了专家对IBD患者需求的观点的趋同.
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