在COVID-19限制期间和之后在英格兰与帕金森病一起生活:一项纵向定性研究
Craig D Murray1, Fiona J R Eccles1, Ian Garner1
1Division of Health Research, Lancaster University, Bailrigg, UK.
Aging & mental health
|October 9, 2023
概括
COVID-19封锁对帕金森病患者产生了负面影响. 这项纵向研究揭示了身份的挑战,疾病进展的加速和优先事项的转变,突出了加强支持系统的必要性.
科学领域:
- 神经学 神经学
- 心理学 心理学 心理学
- 公共卫生 公共卫生
背景情况:
- COVID-19封锁造成了意想不到的负面健康影响.
- 患有帕金森病的个体经历了不成比例的身体和心理健康影响.
- 以前的研究主要是横截面的,缺乏对大流行影响的纵向洞察力.
研究的目的:
- 在COVID-19封锁和放宽限制期间,对帕金森病患者的经历有质量地了解.
- 评估对他们的身体和精神健康的影响.
- 提供对这一群体经验的深入纵向分析.
主要方法:
- 与10名参与者进行了半结构面试,持续了18个月 (2020年5月 - 2021年9月).
- 用解释性现象学分析来分析定性数据.
- 这项研究采用了斯特劳斯和科尔宾的疾病轨迹理论.
主要成果:
- 出现了三个关键主题:身份/机构挑战,加速疾病进展和重新校准优先事项.
- 参与者在疫情期间与他们的帕金森氏症身份和控制斗争.
- 放宽限制导致重定位优先事项从COVID-19回到帕金森病管理.
结论:
- 这是唯一一项在疫情期间对帕金森病患者进行深入纵向分析的研究.
- 这些发现强调了需要动态的理论解释,比如疾病轨迹,以了解患者的经历.
- 当前的支持系统在解决帕金森病患者需要的支持规模和广度方面面临挑战.
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