临床研究是否反映了在部署数字健康技术方面的多样性?
Nathan A Coss1, J Max Gaitán2, Catherine P Adans-Dester1
1HumanFirst, Inc., San Francisco, CA, USA.
NPJ digital medicine
|October 10, 2023
概括
数字健康技术 (DHT) 可以提高临床研究的包容性. 然而,DHT研究中关于健康的社会决定因素 (SDoH) 的报告仍然很低,这阻碍了公平的代表性.
科学领域:
- 临床研究 临床研究
- 数字卫生技术数字卫生技术
- 健康 公平 卫生 公平
背景情况:
- 数字健康技术 (DHT) 提供了扩大临床研究准入的潜力.
- 代表健康的社会决定因素 (SDoH) 对人口健康公平至关重要.
- 目前在临床出版物中关于SDoH的报道,特别是那些使用DHT的报道,尚不清楚.
研究的目的:
- 评估11个SDoH领域在DHT支持的临床研究出版物中的代表性.
- 建议在未来的DHT研究中采集和报告SDoH数据的框架.
- 确定在临床研究中增强SDoH数据收集和报告的机会.
主要方法:
- 对126篇DHT支持的临床研究出版物的系统审查.
- 分析报告频率 11 个特定的 SDoH 域.
- 识别医疗代码,将其映射到拟议的SDoH领域.
主要成果:
- 性,种族和教育是最常见的SDoH领域 (94.4%, 27.8%, 20.6%).
- 其余的8个SDoH域在不到10%的出版物中得到了报道.
- 现有的医疗编码基础设施可以被利用来捕获SDoH数据.
结论:
- 在DHT支持的临床研究中,报告全面的SDoH数据存在重大差距.
- 增加SDoH报告是必要的,以促进公平和包容的研究.
- 利用现有的医疗代码可以促进SDoH数据的捕获和报告.
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