评估父母对自闭症谱系障碍儿童有意义结果的看法
Meredith Close1, Gabriella Aberbach, Eugenia Chan
1Division of Developmental Medicine, Boston Children's Hospital, Boston, MA.
Journal of developmental and behavioral pediatrics : JDBP
|October 11, 2023
概括
对于患有自闭症谱系障碍 (ASD) 的孩子来说,父母的优先事项包括社会,沟通,情感和行为结果. 医疗保健提供者应该询问这些关键领域,以更好地支持家庭.
科学领域:
- 儿童心理学 儿童心理学
- 发育儿科 发育儿科
- 自闭症谱系障碍研究研究
背景情况:
- 自闭症谱系障碍 (ASD) 的结果通常集中在认知,语言,行为和适应性功能上.
- 目前尚不清楚这些标准措施是否符合自闭症儿童及其照顾者的优先事项.
研究的目的:
- 确定家长对ASD儿童关键结果的看法.
- 确定医疗保健提供者是否在临床实践中解决了这些家长的担忧.
主要方法:
- 60名患有自闭症的学龄儿童的家长参加了这次活动.
- 父母回答了关于儿童功能最重要的方面以及医疗保健提供者应该问什么的开放式问题.
- 专题分析被用来编码和分析响应.
主要成果:
- 父母对孩子的关键问题包括"社交"",沟通"",情绪"和"行为".
- 父母认为"与他人沟通和理解"",社交技能"和"行为"是最重要的.
- 父母希望医疗保健提供者询问的主要领域是"社会"功能.
结论:
- 父母对自闭症结果的优先考虑在很大程度上与既定的类别保持一致,特别强调"情感"的幸福感.
- 这些发现表明,医疗保健提供者需要将包括情感方面在内的更广泛的结果措施纳入他们对ASD儿童的评估中.
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