加强对罕见癌症患者的跨部门跨学科以患者为中心的护理:混合方法评估过程的协议
Jana Hinneburg1, Sandro Zacher1, Birte Berger-Höger2
1Institute for Health and Nursing Science, Medical Faculty, Martin Luther University Halle-Wittenberg, Halle (Saale), Germany.
JMIR research protocols
|October 12, 2023
概括
本研究评估了一项计划,通过加强医疗保健提供者之间的合作来改善罕见癌症患者的护理协调. 这些发现将引导在现实世界医疗保健环境中更好地实施这种复杂的干预措施.
科学领域:
- 在瘤学瘤学.
- 医疗保健管理的管理
- 医疗保健服务研究 医疗服务研究
背景情况:
- 罕见癌症占新发癌症病例的24%,涉及近200个不同的实体.
- 有效的治疗需要门诊和住院医疗保健提供者之间强有力的合作.
- 德国医疗保健系统的跨部门沟通缺口可能导致罕见癌症患者的护理缺口.
研究的目的:
- 评估罕见癌症患者的跨部门个性化护理概念.
- 评估干预的真实性,跨部门沟通的实施,以及影响 (预期/非预期).
- 确定在罕见癌症中实施改善护理协调的障碍和促进因素.
主要方法:
- 混合方法的过程评估包括患者,医疗人员和医生.
- 通过问卷,文档分析,采访和观察收集数据.
- 定性数据的专题分析与方法间三角测量相结合.
主要成果:
- 项目资金收到2022年3月1日;干预和招聘开始于2023年3月1日.
- 预计招聘将在2025年9月30日结束.
- 截至2023年6月,已有8名瘤学家/血液学家注册;数据收集始于2023年3月14日.
结论:
- 跨部门个性化护理概念是复杂的医疗保健系统中的复杂干预.
- 过程评估对于理解上下文影响和变化机制至关重要.
- 这项研究旨在优化罕见癌症患者护理的跨部门合作和协调.
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