"我们要为你预订这个":在唐氏综合征确定经验中,对知情决策的威胁
Sarah L Sangster1, Karen L Lawson2
1Department of Psychology, University of Regina, Regina, SK.
概括
在确定唐氏综合征 (DS) 期间,有五种威胁阻碍了知情决策. 了解这些问题,比如放心查,可以改善咨询和支持生殖自主.
科学领域:
- 生殖健康 生殖健康
- 遗传学 遗传学 是一个
- 医学伦理 医学伦理
背景情况:
- 唐氏综合征 (DS) 确定经验涉及复杂的决策.
- 有信息的决策对于生殖自主性至关重要.
研究的目的:
- 在唐氏综合征确定过程中识别和描述对知情决策的威胁.
主要方法:
- 对42名参与者进行了32次叙事采访.
- 分析了专题面试成绩单,以确定关键主题.
主要成果:
- 确定了五种威胁:查的常规化,安抚查,将查与终止混为一谈,概率误解和缺乏中立信息.
- 这些威胁可能会破坏知情决策和生殖自主权.
结论:
- 善意的咨询可以无意中威胁到生殖自主权.
- 护理提供者可以修改咨询实践,以减轻这些威胁.
- 调查结果提供了加拿大对DS确定经验的观点.
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