基于Web的生殖决策支持工具的可行性测试用于囊性纤维化
Traci M Kazmerski1, Olivia M Stransky1, Catherine E Wright2
1University of Pittsburgh School of Medicine, Pittsburgh, PA; Center for Innovative Research on Gender Health Equity (CONVERGE), University of Pittsburgh, Pittsburgh, PA.
概括
MyVoice:CF工具是一个受欢迎的,用户友好的系统,可以增强患有囊性纤维化 (CF) 的女性的生殖健康沟通. 它显著提高了自我效能和CF护理中关于生殖目标的讨论频率.
科学领域:
- 生殖健康 生殖健康
- 囊性纤维化 护理 囊性纤维化
- 医疗信息学 医疗信息学
背景情况:
- 患有囊性纤维化 (CF) 的人越来越关注生殖健康和计划生育.
- 需要有效的决策支持工具,以适应CF人口的独特需求.
研究的目的:
- 开发和评估MyVoice:CF的实施,这是一个基于Web的,以患者为中心的工具,旨在支持CF护理中的生殖决策.
- 评估MyVoice:CF在CF妇女及其医疗保健提供者的可接受性,适当性和可用性.
主要方法:
- 一项可行性试验与患有CF和多学科CF提供者的18-44岁妇女进行.
- 参与者在去诊所之前使用了MyVoice:CF工具,并完成了调查,评估其对沟通和结果的影响.
- 从基线到3个月后的随访,使用描述性统计数据和适当的非参数测试来比较结果.
主要成果:
- 患者参与者在接受度 (4.48/5),适当性 (4.61/5),可用性 (82.25/100) 方面对MyVoice:CF进行了高度评价.
- 使用MyVoice:CF导致生殖健康沟通的自我有效性显著改善 (p<0.001).
- 与CF团队讨论生殖目标的参与者比例从36%增加到59% (p=0.049).
结论:
- 我的声音:CF是一个可接受的,适当的和可用的工具,为个人与CF.
- 初步发现表明MyVoice:CF可以提高自我效能和生殖健康沟通的频率.
- 需要进一步的研究来充分评估MyVoice:CF对生殖健康结果的影响.
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