在患有斑块性牛皮的患者中化
Barbara Jankowiak1, Elżbieta Krajewska-Kułak1, Marta Jakoniuk2
1Department of Integrated Medical Care, Medical University of Bialystok, 15-096 Białystok, Poland.
Journal of clinical medicine
|October 14, 2023
概括
患有斑块牛皮的患者经历了显著的污名化,特别是妇女和农村地区的患者. 牛皮病变的程度会影响人们对阳性态度的看法,这凸显了需要更多地关注与疾病相关的耻辱感.
科学领域:
- 皮肤病学 皮肤病学
- 心理社会医学 心理社会医学
- 公共卫生 公共卫生
背景情况:
- 斑块性牛皮是一种慢性炎症性皮肤疾病,与严重的心理社会负担有关.
- 污名化是牛皮的一个已知的后果,影响患者的生活质量和幸福感.
- 了解影响牛皮污名化的人口和临床因素对于有针对性的干预至关重要.
研究的目的:
- 调查斑块性牛皮患者的污名化程度.
- 分析人口统计和临床特征以及耻辱感之间的关系.
- 为了确定受患者属性影响的耻辱的特定领域.
主要方法:
- 一项涉及122名斑块性牛皮患者的横截面研究.
- 使用了6项和33项的耻辱感问卷.
- 收集的社会人口统计数据和关于病变分布的临床信息.
主要成果:
- 平均污名化得分为6.4 (6项规模) 和81.3 (33项规模).
- 女性患者报告的污名化程度高于男性.
- 农村居民在"对他人的态度敏感"和"保密"领域经历了更大的耻辱.
- 在"积极态度"领域中,广泛的牛皮病变与耻辱相关.
- 在"有缺陷的感觉"领域观察到显著差异 (平均得分13.4).
结论:
- 耻辱化是斑块牛皮患者中普遍存在的问题.
- 人口因素 (性别,位置) 和临床因素 (损伤程度) 显著影响与牛皮有关的耻辱感.
- 解决牛皮的耻辱需要一种超越临床管理的综合方法,考虑心理社会影响.
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