当前验证的临床和患者报告的疾病结局措施在青少年异常性关节炎
Erin Balay-Dustrude1,2, Susan Shenoi1,2
1Department of Pediatrics, Division of Rheumatology, University of Washington, Seattle, WA, USA.
Open access rheumatology : research and reviews
|October 16, 2023
概括
准确的结果测量对于管理青少年异常性关节炎 (JIA) 至关重要. 本综述详细介绍了验证的临床,成像,患者报告和功能工具,以有效评估JIA患者.
科学领域:
- 儿科风湿病学 儿科风湿病学
- 临床测量科学 临床测量科学
背景情况:
- 青少年异常性关节炎 (JIA) 是一种普遍存在的儿童慢性疾病,具有多种表现.
- 有效管理JIA需要精确评估临床状态,功能能力和生活质量.
研究的目的:
- 审查和总结针对青少年异常性关节炎的验证结果测量工具.
- 突出JIA评估工具的发展和完善.
主要方法:
- 在JIA中对验证的结果措施进行了全面的文献审查.
- 将措施分为临床,成像,患者报告和功能领域.
- 根据风湿病学结果测量 (OMERACT) 原则验证的工具的讨论.
主要成果:
- 总结了关键的临床措施 (例如,JADAS,ACR/Wallace标准),成像分数 (例如,Dijkstra,CARSH),患者报告的结果 (例如,PROMIS,PedsQL) 和功能评估 (例如,CHAQ,JAFS).
- 确认正在进行的新JIA结果措施的开发和验证.
结论:
- 经过验证的结果测量对于跟踪疾病进展和JIA治疗疗效至关重要.
- 这些工具的不断改进有助于改善儿科风湿病的临床决策和研究.
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