为患有骨盆器官脱落的妇女共同设计一个网站:一个研究协议
Maria-Louise Carroll1,2,3, Catherine Doody1,2, Cliona O' Sullivan1
1University College Dublin, Dublin, Leinster, D04C7X2, Ireland.
HRB open research
|October 16, 2023
概括
患有骨盆器官脱落 (POP) 的女性需要更好的在线信息. 本研究共同设计了一个用户友好的网站,使用患者和医疗保健专业人员的意见来改善获得可靠的POP健康资源的机会.
科学领域:
- 数字健康数字健康
- 医疗信息学 医疗信息学
- 患者教育 患者教育
背景情况:
- 骨盆器官脱落 (POP) 很普遍,但女性仍在努力寻找可靠的信息.
- 许多人依赖社交媒体,社交媒体往往包含低质量,难以理解的内容.
- 现有的信息获取挑战需要改善POP患者的数字健康资源.
研究的目的:
- 共同设计一个信息网站,用于经历骨盆器官脱落 (POP) 的绝经前妇女.
- 确保网站设计是根据医疗保健消费者网站开发模型 (WDMHC) 框架进行的.
- 创建一个可靠和可访问的在线资源,以适应女性的需求.
主要方法:
- 使用了四相WDMHC框架,包括用户分析,功能分析,认知步骤和用户测试.
- 招募患者和医疗保健专业人员 (HCP) 利益相关者参加联合设计研讨会.
- 员工聚焦小组,NVivo分析,启发式测试和可用性问卷 (SUS,电子健康影响,DISCERN).
主要成果:
- 这项研究将为开发和测试以POP为中心的患者信息网站提供信息.
- 网站的设计和内容将以利益相关者的意见和健康素养原则为指导.
- 该过程涉及基于用户反的代设计,测试和修改.
结论:
- 这项研究解决了对女性POP的可访问,基于证据的在线信息的关键需求.
- 共同设计方法确保最终的网站满足目标受众的特定需求.
- 该研究有助于提高数字健康素养和患者在管理POP方面的赋权.
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