了解结直肠癌患者的随访:一种定性面试研究
Darren C R Fernandes1,2, David Nelson3,4, Aloysius Niroshan Siriwardena5
1The Department of Gastroenterology, United Lincolnshire NHS Trust, Lincoln County Hospital, Lincoln, UK. dcrfernandes@gmail.com.
概括
结肠直肠癌 (CRC) 患者在随访期间经历了严重的痛苦和障碍,无法讨论症状. 许多人发现"癌症幸存者"一词存在问题,强调需要更好的整体支持和沟通.
科学领域:
- 在瘤学瘤学.
- 患者体验 患者体验
- 定性研究是指质量研究.
背景情况:
- 越来越多的结直肠癌 (CRC) 患者在治疗后面临持续的身体和心理症状.
- 这些患者的术语"癌症幸存者"是有争议的,可能与他们的经历不符.
研究的目的:
- 探索英国CRC患者的随访经验.
- 确定CRC诊断和治疗后患者的首选术语.
主要方法:
- 从专门的CRC随访诊所采集患者的有目的抽样.
- 进行1:1半结构化定性访谈,直到数据和.
- 对面试数据进行主题分析.
主要成果:
- 在随访期间,对CRC患者来说,对复发的恐惧是主要的担忧.
- 临床和行政障碍阻碍了症状讨论,包括患者的尬和时间限制.
- 患者报告说,对于严重的心理和社会痛苦而言,整体支持不足,并且发现"癌症幸存者"标签存在问题.
结论:
- 临床医生必须系统地查CRC患者的治疗后症状.
- 患者在癌症治疗后的日常获得支持途径和计划对于患者在癌症治疗后的生活中至关重要.
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