痴呆症患者的良好死亡:一种定性研究
Md Razib Mamun1, Yoshihisa Hirakawa2, K M Saif-Ur-Rahman1,3,4,5
1Department of Public Health and Health Systems, Graduate School of Medicine, Nagoya University, Nagoya, Japan.
BMC geriatrics
|October 16, 2023
概括
对于痴呆症患者来说,良好的死亡包括无痛苦,在理想的环境中死亡,并保持尊严. 了解这些感知可以显著提高痴呆症护理质量.
科学领域:
- 老年学是指老年学的学科.
- 抚慰性护理是一种缓解性护理.
- 痴呆症研究 痴呆症研究
背景情况:
- 定义"良好的死亡"对于息和终身护理至关重要,但对于痴呆症患者来说,人们对其了解甚少.
- 对良好的死亡的更好理解可以提高对痴呆症患者提供的护理质量.
- 这项研究解决了有关痴呆症护理中对良好的死亡的多面观的证据差距.
研究的目的:
- 探索和理解多个利益相关者的不同观点,了解什么是痴呆症患者的良好死亡.
- 从患者,医疗保健专业人员和护理人员的角度来看,确定定义良好的死亡的关键主题和组件.
- 根据利益相关者定义的良好死亡要素,为改进痴呆症护理策略的制定提供信息.
主要方法:
- 在日本六个县采用了定性研究设计.
- 通过对痴呆症患者,医生和护士进行33次深入采访来收集数据.
- 与家庭护理人员和护理工作者进行了六次焦点小组讨论,随后进行了字面转录的诱导性内容分析.
主要成果:
- 六个相互关联的主题出现了:无痛苦的死亡,在喜欢的环境中死亡,家庭应对,保持正常的生活,尊重生活,以及为死亡做好准备.
- 参与者认为良好的死亡是一个持续的过程,而不是单一的事件.
- 确定的主要组成部分包括身体舒适,环境偏好,社会和家庭支持以及个人尊严.
结论:
- 这项研究概述了为痴呆症患者的良好死亡做出贡献的基本要素.
- 这些已识别的组件为改善痴呆症患者终身护理和支持系统提供了一个框架.
- 这些发现强调了整体,以人为中心的方法对痴呆症息护理的重要性.
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