患有的儿童和他们的父母之间关于报告生活限制的协议
Chloe Bedard1, Mark A Ferro1, Robyn Whitney2
1School of Public Health Sciences, University of Waterloo, Waterloo, Ontario, Canada.
Epilepsy & behavior : E&B
|October 18, 2023
概括
关于症限制的亲子协议很差,父母报告的限制较少. 发作和更长的持续时间增加了分歧,突出了儿童报告措施的必要性.
科学领域:
- 儿科神经学 儿科神经学
- 儿童心理学 儿童心理学
- 的研究研究.
背景情况:
- 儿童严重影响日常生活和社会参与.
- 评估相关限制的影响需要了解儿童和家长的观点.
研究的目的:
- 评估使用"儿童的海牙限制量表" (HARCES) 对相关限制的亲子协议.
- 为了确定与父母和孩子的分歧和症儿童的限制水平相关的临床因素.
主要方法:
- 90名儿童 (9-17岁) 和他们的父母参与了临床样本.
- 父母完成了HARCES,而孩子们则使用了儿童友好的修改版 (HARCES-M).
- 通过类内相关系数 (ICC) 和配对t测试来评估协议;逻辑和线性回归分析了临床因素.
主要成果:
- 在HARCES (ICC = 0.36) 上发现了父母与子女的不良协议.
- 父母报告说,与儿童相比,父母对日常活动和社交活动的限制较少.
- 发作和更长的持续时间与更大的亲子分歧有关.
结论:
- 感知限制的差异凸显了儿童报告数据与父母报告一起纳入的必要性.
- 需要进一步的研究来阐明影响父母和儿童限制的因素.
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