一项关于膀外缩和表皮病患者的性,生殖和生育结果的观察性研究
Emma Van den Eede1, Mira Sterckx1, Kato Vangelabbeek1
1Faculty of Medicine and Health Sciences, University of Antwerp, Universiteitsplein 1 Wilrijk, Antwerp, 2610, Belgium.
Journal of pediatric urology
|October 19, 2023
概括
患有膀外缩和表皮病综合体 (BEEC) 的成年人面临性功能和心理健康方面的重大挑战,尽管他们的生活质量普遍很高. 改善长期后续护理对于解决这些复杂的健康问题至关重要.
科学领域:
- 泌尿器科 泌尿器科 泌尿器科 泌尿器科
- 遗传性缺陷 遗传性缺陷是一种先天性缺陷
- 患者的治疗结果.
背景情况:
- 膀外和表皮综合体 (BEEC) 涵盖了一系列具有终身影响的先天性异常.
- 对于BEEC患者的长期应对机制和生活质量,人们的了解有限.
研究的目的:
- 评估在儿童时期接受了重建性手术的成年BEEC患者的性,尿和生育结果.
- 确定对BEEC患者的长期随访护理需要改进的领域.
主要方法:
- 一项涉及63名成年BEEC患者 (18-45岁) 的横截面研究.
- 电子问卷评估了性福利,尿失禁和生育能力,并补充了医疗记录数据.
- 数据链接是匿名进行描述性分析.
主要成果:
- 大多数患者 (22名男性,8名女性) 是性活跃的,但由于身体和心理因素,男性的满意度较低.
- 通过导管 (90%) 的尿路转移导致了诸如气味,感染和性功能障碍等并发症.
- 生育是可能的,有8/13的男性和2/4的女性使用自己的精子来怀孕.
结论:
- 在成年生活中,BEEC带来了巨大的挑战,影响了心理健康和性功能.
- 标准化问卷显示了高质量的生活,但也显著的心理健康负担.
- 建议采用整体的,跨学科的方法来长期跟踪BEEC患者.
相关概念视频
Anatomy of the Genitourinary System II: Bladder and Urethra
125
The lower urinary system consists of the urinary bladder and urethra, which are essential in storing and expelling urine from the body. Together with the internal and external sphincters, these structures work together to regulate urination effectively.Anatomy of the BladderThe urinary bladder is a muscular, stretchable organ behind the pubic bone and in front of the rectum. In females, the bladder is positioned anterior to the vagina and inferior to the uterus, while in males, it is located...
125
Urologic Endoscopic Procedure: Cystoscopic Examination
28
Meaning of Cystoscopic Examination:Cystoscopy is an essential diagnostic tool in urology that is used to assess the structure and function of the genitourinary system. It provides a direct view of the urethra, bladder, and, in some cases, the ureteral openings. This procedure helps detect structural abnormalities, infections, cancers, and blockages in the urinary tract. There are two types of cystoscopy:Flexible cystoscopy is commonly performed in outpatient settings due to its less invasive...
28
Imaging Studies VI: Voiding Cystourethrography and Cystography
10
Voiding Cystourethrography (VCUG) and Cystography are specialized radiographic procedures used to examine the structure and function of the bladder and urethra.Voiding Cystourethrography (VCUG)A Voiding Cystourethrogram (VCUG) is a diagnostic imaging procedure that assesses the anatomy and function of the lower urinary tract. It focuses on the bladder, bladder neck, and urethra, helping detect abnormalities such as vesicoureteral reflux (VUR)—the backward or reverse flow of urine into the...
10
Nursing Assessment of the Genitourinary System I: Health History
26
The genitourinary system is critical to maintaining fluid balance, waste elimination, and reproductive function. Nurses play a vital role in assessing this system, beginning with a thorough health history. This process involves gathering patient information, identifying risk factors, and recognizing symptoms of genitourinary disorders. Early detection is vital for timely interventions and management.1. Gathering Patient InformationA complete health history includes the patient’s personal,...
26
Urodynamic Studies: Uroflowmetry
52
Uroflowmetry is a non-invasive urodynamic test designed to measure various aspects of urination, including volume, flow rate, and the time to void. This test is crucial for diagnosing and assessing conditions such as bladder outlet obstruction, bladder dysfunction, incomplete bladder emptying, incontinence, and urinary tract blockages caused by benign prostatic hyperplasia (BPH) and urethral strictures.Pre-Test Instructions:Before a uroflowmetry test, patients are typically advised to drink...
52


