幼儿对治疗和护理的看法:使用叙事和基于游戏的采访进行定性研究
Patricia DeCosta1, Timothy C Skinner2, Jette Led Sørensen3
1Department of Prevention, Health Promotion & Community Care, Steno Diabetes Center Copenhagen, Copenhagen University Hospital, Copenhagen, Denmark; Department of Psychology, University of Copenhagen, Copenhagen, Denmark.
患有慢性疾病的幼儿需要感到安全和有权力. 他们的经验强调了参与和关系在医疗保健环境中的重要性.
科学领域:
- 儿科心理学 儿科心理学
- 儿童健康 儿童健康
- 慢性疾病管理 慢性疾病管理
背景情况:
- 患有慢性疾病的幼儿 (3-6岁) 在理解和导航他们的治疗方面面临着独特的挑战.
- 他们对护理的看法对于开发有效的支持系统至关重要.
研究的目的:
- 探索幼儿 (3-6岁) 对于慢性疾病的治疗和护理的经验和看法.
- 了解3-6岁的孩子如何看待他们的慢性疾病管理.
主要方法:
- 用叙事和基于游戏的采访对八名被诊断为1型糖尿病或囊性纤维化症的儿童 (3-6岁) 进行定性研究.
- 视频录制的家庭游戏课程的解释性现象学分析,以了解儿童的经历.
主要成果:
- 儿童对疾病的理解与他们对治疗和护理的身体体验有关.
- 经历范围从无能到代理,强烈依赖父母的安慰和倡导.
- 熟悉,关系和信任极大地影响了孩子们对照料的看法.
- 患有1型糖尿病的儿童在医疗咨询和与奖励相关的治疗期间感到被动.
结论:
- 儿童需要感到安全,并通过参与和与医疗保健专业人员建立积极关系来发展行动力.
- 优先考虑适合年龄的心理社会护理对于支持儿童参与,建立关系和对医疗保健机构的信任至关重要.
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