描述乳腺癌患者的信息需求和信息搜索行为
Abigail Ludwigson1, Victoria Huynh2, Sudheer Vemuru2
1University of Colorado School of Medicine, 13001 E 17th Pl, Aurora, CO, USA.
American journal of surgery
|October 20, 2023
概括
乳腺癌患者对诊断和治疗信息表示满意. 然而,金融,性健康和生育能力等关键话题需要更多的讨论,以提供全面的患者支持.
科学领域:
- 在瘤学瘤学.
- 患者支持 患者支持
- 卫生沟通健康沟通
背景情况:
- 获取信息对于癌症患者的调整至关重要.
- 乳腺癌患者的信息需求和满意度需要描述.
- 了解患者报告的信息资源是关键.
研究的目的:
- 评估乳腺癌患者的信息满意度.
- 确定乳腺癌患者使用的信息资源.
- 为了评估对各种癌症相关主题信息的满意度.
主要方法:
- 对新诊断的0-III期乳腺癌患者进行了问卷调查.
- 患者报告了信息来源和满意度水平.
- 半结构面试与部分受访者进行了半结构面试.
主要成果:
- 医生 (96%) 和互联网 (81%) 是主要的信息来源.
- 患者对诊断和治疗信息表示高度满意.
- 财务,性健康和生育信息的讨论较少.
结论:
- 虽然对诊断和治疗信息的满意度很高,但在其他关键领域存在差距.
- 乳腺癌患者重视提供者信息,但使用在线资源和同行支持.
- 解决关于财务,性健康和生育能力的未满足信息需求对于整体护理至关重要.
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