导致帕金森病护理人员负担的因素
Gabriela M Soares1, Raquel Bouça-Machado2,3,4, Daisy Abreu3
1Faculdade de Medicina Universidade de Lisboa Lisbon Portugal.
Movement disorders clinical practice
|October 23, 2023
概括
在帕金森病 (PD) 中,护理人员负担与关系变化,财务压力以及患者年龄和强迫行为等因素有关. 了解这些因素可以帮助支持PD护理人员.
科学领域:
- 神经学 神经学
- 护理人员支持护理人员支持
- 帕金森病研究 帕金森病研究
背景情况:
- 在帕金森病 (PD) 中,非正式照顾者的负担越来越被认可.
- 关于导致PD护理人员负担的因素的数据有限.
研究的目的:
- 在照顾帕金森病患者的个人中,确定与护理人员负担相关的关键因素.
主要方法:
- 分析了一项跨国在线调查 (帕金森氏症现实影响评估SMent - PRISM).
- 使用了包括PDQ-39,NMSQuest,QUIP和Zarit负担面试 (ZBI) 在内的问卷.
- 检查患者的药物使用,并发症,生活质量,关系变化和资源利用情况.
主要成果:
- 一组245名患者护理人员的队列报告了轻度至中度的负担.
- 重要因素包括护理人员对PD对伙伴关系影响的看法,财务负担,护理时间,患者年龄,高性欲和与健康相关的生活质量 (HRQoL).
- 这些变量解释了66.8%的护理人员负担差异.
结论:
- 对帕金森病患者的护理工作涉及到相当大的负担.
- 增加的负担与感知到的伙伴关系变化,照顾者花费的时间,财务压力,患者年龄较大,患者HRQoL较差以及患者的性强迫冲动有关.
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