让患者参与LifeChamps项目:初步发现
Emmanouil Kokoroskos1, Natalia Stathakarou2, Erica Rauhala1
1Academic Primary Health Care Center, Region Stockholm, Sweden.
Studies in health technology and informatics
|October 23, 2023
概括
患者参与研究对于开发相关的健康产品至关重要. 本研究探讨了老年癌症幸存者的研究参与的观点,以建立明确的参与标准.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者和公众参与.
- 定性研究方法论 定性研究方法论
背景情况:
- 患者参与研究被认为是开发以患者为中心的健康产品和服务的关键.
- 缺乏标准化的术语和实施方法,阻碍了患者在欧盟范围内持续参与研究.
- "LifeChamps:一个支持癌症冠军的集体智能平台"项目旨在解决这些标准化差距.
研究的目的:
- 探索老年癌症幸存者的观点和经验,以了解他们在健康研究中的参与.
- 确定患者的需求,以便有效地参与研究研究.
- 为患者参与研究的标准化方法的开发提供信息.
主要方法:
- 一项正在进行的定性研究,采用半结构面试.
- 参与者包括65岁以上的癌症幸存者.
- 在斯德哥尔摩和塞萨洛尼基对退出可行性研究的个人进行了采访.
主要成果:
- 目前正在进行面试数据的专题分析.
- 预计研究结果将揭示患者对参与研究的关键观点.
- 预期的结果将突出患者参与的具体要求.
结论:
- 了解患者的观点对于建立有效的研究参与标准至关重要.
- 这项研究将为患者参与研究的偏好提供有价值的见解.
- 这些结果旨在指导"LifeChamps"项目和更广泛的患者参与研究实践.
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