让病人变得政治化:叙述,策划,制定和导航"理想化的政策患者"
Rebecca Dimond1, Neil Stephens2, Cathy Herbrand3
1Cardiff School of Social Sciences, Cardiff University, Glamorgan Building, King Edward VII Avenue, Cardiff, CF10 3WT, UK.
Social science & medicine (1982)
|October 23, 2023
概括
"理想化的政策患者"的概念解释了患者叙述如何影响政策,正如英国线粒体捐赠辩论所示. 该框架强调了患者的痛苦叙述如何在宣传中被战略性地使用.
科学领域:
- 医学社会学 医学社会学
- 生物伦理学生物伦理学
- 卫生政策 卫生政策
背景情况:
- 患者家庭活动在塑造卫生政策辩论方面发挥着重要作用.
- 构建和调动有说服力的患者叙述是倡导的关键机制.
- 英国关于合法化线粒体捐赠 (2011-2015年) 的辩论提供了一个相关的案例研究.
研究的目的:
- 开发和探索"理想化的政策患者"的概念.
- 了解在政策背景下促进和调动强大的患者叙述.
- 在线粒体捐赠辩论中分析"理想化的政策患者"的维度.
主要方法:
- 基于对患者家属和利益相关者的采访进行的定性研究.
- 围绕线粒体捐赠的公共和政策话语的文献分析.
- 识别和分析四个维度:叙述,策划,演出和导航.
主要成果:
- "理想化的政策患者"是围绕患者痛苦的叙述构建的,将线粒体捐赠定位为道德解决方案.
- 确定了四个维度:叙述 (公众介绍),策划 (促进叙述),制定 (患者和家庭的实施体),和导航 (对立的观点).
结论:
- 医学社会学需要更好地审查患者倡导如何通过与强大的团体结盟来利用地位.
- "理想化的政策患者"概念为理解患者在政策中的叙事力量提供了一个框架.
- 未来的研究应该探索"理想化的政策患者"在不同政策环境中的复制和适应.
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