探索患有脑的年轻成年人的过渡经历
Isabelle Clough1, Evelyn Culnane1,2, Hayley Loftus2
1Melbourne School of Population and Global Health, The University of Melbourne, Carlton, Victoria, Australia.
Child: care, health and development
|October 24, 2023
概括
患有脑的年轻人需要更好的准备和支持,以便从儿科到成人医疗保健过渡. 在这个关键时期,改善协调和成人服务是积极的医疗体验的关键.
科学领域:
- 医疗保健转型研究 医疗保健转型研究
- 发育障碍是一种发展障碍.
- 儿童至成人医疗保健服务.
背景情况:
- 对于患有脑等慢性疾病的年轻人来说,有效的医疗保健转型至关重要.
- 了解他们的经历优化了从儿科到成人机构的护理转移.
- 本研究探讨了在过渡到成人服务期间和之后的医疗保健经验.
研究的目的:
- 调查大脑麻的年轻成年人在从儿科到成人医疗保健服务的过渡期间的医疗保健经历.
- 确定在成人环境中实现积极医疗保健体验的因素.
- 为改善医疗保健过渡支持的战略提供信息.
主要方法:
- 针对11名患有脑的年轻成年人进行了有目的的抽样.
- 进行了十次一对一的电话采访和一份书面回复.
- 利用转录的采访进行主题分析来描述过渡经历.
主要成果:
- 确定了关键主题:年轻人和家长的准备,转移和护理连续性的协调,以及适应成人服务.
- 副主题包括对成人护理的期望,自我管理技能的发展,儿科和成人服务之间的差异,服务的可访问性和自主权.
- 经验是由准备,转移协调和成人服务能力所塑造的.
结论:
- 专门的过渡支持对于从儿科到成人医疗保健的协调良好转移至关重要.
- 年轻人在成人护理中的经历取决于他们的过渡过程以及成人服务能够满足他们的需求的能力.
- 优化医疗保健转型需要专注于准备,协调和成人服务适应.
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