随着时间的推移,检查IDD患者的选择和控制
James Houseworth1, Sandra L Pettingell1, Julie Bershadsky1
1James Houseworth, Sandra L. Pettingell, Julie Bershadsky, and Renáta Tichá, Institute on Community Integration, University of Minnesota.
American journal on intellectual and developmental disabilities
|October 24, 2023
概括
智力和发育障碍 (IDD) 患者表现出日常决策的增加. 然而,与支持相关的选择并没有得到改善,这突出了宾夕法尼亚州IDD服务用户在自主权方面的差距.
科学领域:
- 社会科学 社会科学 社会科学
- 关于残疾人的研究.
- 公共卫生 公共卫生
背景情况:
- 在民主社会中,选择对于成年人的发展和自主性至关重要.
- 智力和发育障碍 (IDD) 的人面临着独特的选择障碍,包括监护和非以人为中心的支持.
- 对表达欲望的能力有限,可能会进一步削弱IDD患者的选择机会.
研究的目的:
- 在宾夕法尼亚州IDD的成年服务用户中分析随时间变化的选择.
- 调查日常决策和支持相关决策的趋势.
- 确定影响决策演变的因素,作为IDD患者权利和包容性指标.
主要方法:
- 分析来自9,195名和9,817名IDD成年服务用户的独立质量监测 (IM4Q) 数据.
- 使用重复测量混合回归来检查随时间推移的选择.
- 对包括年龄,支持需求,居住类型和社区类型在内的变量进行控制,跨越三个数据波 (2013年,2016年,2019年).
主要成果:
- 在宾夕法尼亚州的IDD服务用户中观察到日常选择的显著增加.
- 在研究期间,与支持相关的决策没有显著增加.
- 这项研究为患有IDD的个体做出选择的时间动态提供了新的见解.
结论:
- 虽然日常选择有所改善,但在支持相关的选择方面缺乏进展表明,IDD患者面临着持续的挑战.
- 这项研究强调了继续努力加强IDD个体的自主性和包容性的重要性.
- 调查结果强调了需要以人为中心的服务方法来促进更大的自决.
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