残疾教育和对遗传咨询师培训的影响
Lauren Douglas1,2, Jennifer Czerwinski1,3, Rose Vukovic4,5
1University of Texas MD Anderson Cancer Center UT Health Graduate School Biomedical Sciences, Houston, Texas, USA.
Journal of genetic counseling
|October 25, 2023
概括
遗传咨询师 (GC) 需要改善残疾教育. 残疾和GC社区都建议包括医疗,社会,生活经验和残疾人权利的内容,强调对残疾人的接触.
科学领域:
- 基因咨询 基因咨询
- 关于残疾人的研究.
- 医学教育 医学教育
背景情况:
- 遗传咨询 (GC) 在平衡患者自主权与为残疾人辩护方面面临批评.
- 需要在GC培训计划中评估和增强残疾教育.
研究的目的:
- 评估残疾人和GC社区对残疾教育的态度.
- 确定GC残疾教育的基本内容.
- 评估目前GC残疾教育的情况.
主要方法:
- 电子调查分发给残疾社区成员和遗传咨询师.
- 分析了672名受访者 (596名残疾人社区,76名GC) 的数据.
主要成果:
- 残疾人社区认为GC对残疾的医疗 (71%) 比社会/生活方式 (49%) 方面的知识更丰富.
- 总体医生报告说,在讨论医疗 (89%) 和社会 (65%) 方面,他们感到更舒服.
- 两个社区都建议包括医疗,社会/生活方式,生活经验和残疾人权利的内容,强调包括残疾人.
结论:
- 全国康复中心残疾教育需要提升,特别是在社会/生活方式方面和生活经验方面.
- 未来的GC培训应该包含全面的残疾内容和对残疾人的接触.
- 改进培训将提高残疾人和他们的家人服务的质量.
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