社区参与研究与拉丁裔痴呆症护理人员:克服社区咨询委员会发展挑战
Maria M Quiñones1, Silvia Sörensen2, Kenneth Hepburn3
1Elaine C. Hubbard Center for Nursing Research on Aging, School of Nursing, University of Rochester Medical Center, Rochester, New York, USA.
The Gerontologist
|October 25, 2023
概括
患有阿尔茨海默病和相关痴呆症 (ADRD) 的人的拉丁裔护理人员从社区咨询委员会 (CAB) 培训中受益. 这项计划增强了他们的知识,并改善了他们对参与研究的态度.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 基于社区的参与式研究
- 老年学是指老年学的学科.
背景情况:
- 西班牙裔/拉丁裔人口对阿尔茨海默病和相关痴呆症 (ADRD) 患者的照顾率最高.
- 拉丁裔社区在ADRD研究中的代表性不足限制了基于证据的干预措施的获取.
- 建立和维持社区咨询委员会 (CAB) 的挑战阻碍了研究包容性.
研究的目的:
- 描述应对在拉丁裔社区建立和维护CAB所面临的挑战的策略.
- 增强拉丁裔CAB成员参与ADRD研究的能力.
- 改善拉丁裔护理人员对ADRD患者的研究参与和结果.
主要方法:
- 为9名拉丁裔CAB成员,包括老年护理人员,制定了一项全面的培训计划.
- 培训重点是健康研究方法,伦理学,认知健康和文化适应.
- 培训前后的评估衡量了对ADRD研究的知识,态度和信念;还进行了满意度调查.
主要成果:
- 该培训计划受到CAB成员的积极欢迎.
- 参与者表现出对痴呆症症状管理,风险因素和治疗方法的知识增加.
- CAB成员对研究的态度有所改善,包括更愿意参加临床试验,更了解受试者保护.
结论:
- 在研究行为,伦理和健康素养方面的正式培训有效地克服了CAB建立和维护的障碍.
- 优化CAB的影响可以帮助解决关于老拉丁裔ADRD护理的研究中的关键差距.
- 赋予CAB成员权力,增强他们在社区内推进ADRD研究中的作用.
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