对患有先天性心脏病的青少年进行护士领导的多组分过渡计划的评估
Michèle de Hosson1, Katya De Groote2, Ann Van Hecke3
1Ghent University Hospital, Department of Adult Congenital Heart Disease, Ghent, Belgium.
Patient education and counseling
|October 25, 2023
概括
"心脏过渡" (TWAH) 计划显著改善了患有先天性心脏病 (CHD) 的青少年的疾病知识和过渡经验. 该计划没有影响生活质量,但确保在后续护理中没有差距.
科学领域:
- 心脏病学 心脏病学
- 儿科健康 儿科健康
- 过渡医学是过渡医学.
背景情况:
- 患有先天性心脏病 (CHD) 的青少年需要专门的计划来管理他们从儿科到成人护理的过渡.
- 有效的过渡计划旨在提高疾病知识,提高生活质量 (QoL),并确保护理的连续性.
研究的目的:
- 评估"心脏过渡" (TWAH) 计划在增强患有心脏病的青少年的疾病相关知识,生活质量和过渡经验方面的有效性.
- 评估TWAH对识别和解决这一群体随访护理方面的差距的影响.
主要方法:
- 使用对照组进行前后测试设计,包括中度至重度心血管疾病的青少年 (≥12岁) 和他们的父母.
- 使用连续采样,通过t测试和多变量回归分析数据,以确定结果预测因素.
主要成果:
- 青少年在TWAH组显示,与疾病相关的知识显著增加 (59.8%至75.7%) 和改进过渡经验.
- 疾病知识和过渡经验与TWAH参与有积极的相关性 (p < 0.01).
- 生活质量主要受到心脏病复杂性的影响,而不是TWAH计划;没有参与者有随访差距.
结论:
- 该TWAH计划大大提高了患有冠状动脉疾病的青少年的疾病相关知识和过渡经验.
- 需要进一步的研究来证实过渡经验的发现;TWAH模型适用于其他慢性疾病.
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