开发和设计一个基于互联网的支持和教育计划,用于等待移植的患者与已故的捐赠者通过:一个德尔菲研究
Kristina Nilsson1,2, Gerhard Andersson3,4, Peter Johansson5,6
1Department of Health, Medicine and Caring Sciences, Linköping University, Norrköping, Sweden. kristina.nilsson@liu.se.
BMC nephrology
|October 25, 2023
概括
这项研究完善了移植患者的在线计划. 专家们就教育和心理支持内容达成一致,加强为已故捐赠者的移植做好准备.
科学领域:
- 腎臟病學 (nephrology) 是一種醫學專業.
- 移植医学 移植医学
- 医疗信息学 医疗信息学
背景情况:
- 等待移植的患者面临不确定性,需要量身定制的支持.
- 现有的资源可能无法充分满足这些患者的心理社会和教育需求.
研究的目的:
- 开发和完善基于互联网的支持和教育计划的内容和设计.
- 为等待已故捐赠者的移植的患者提供资源.
主要方法:
- 一个两轮的德尔菲过程,涉及患者,重要的人,和医疗保健专业人员.
- 网页问卷评估了内容和设计的重要性,使用5分级.
- 为了达成共识,使用了定量和定性分析.
主要成果:
- 在第一轮中,在所有最初的内容和设计项目上都达成了共识.
- 在第二轮中,确定并同意了四个新的内容和设计方面.
- 关键的改进包括关于家庭生活的信息,扩展了移植细节和计划个性化.
结论:
- 在各种专家之间就节目的最佳内容和设计达成共识.
- 这种精致的基于互联网的程序适用于支持等待已故捐赠者移植的患者.
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