用于开发流行病学研究的FAIR问卷模块的quest标记
Daniel E Russ1, Nicole M Gerlanc2, Brian Shen2
1Division of Cancer Epidemiology and Genetics, National Cancer Institute, 9609 Medical Center Drive, Bethesda, MD, 20892, USA. daniel.russ@nih.gov.
BMC medical informatics and decision making
|October 26, 2023
概括
我们开发了Quest,这是一个开源的标记语言,用于流行病学研究问卷. 这有利于可重复使用的问卷模块和数据互操作性,解决基于Web的数据收集方面的挑战.
科学领域:
- 流行病学 流行病学
- 医疗信息学 医疗信息学
- 网络技术 网络技术
背景情况:
- 在线问卷对流行病学研究至关重要.
- 目前开源标记标准的局限性阻碍了基于Web的问卷模块的协作开发和可重复使用性.
- 缺乏互操作性阻止了在研究中共享问卷模块.
研究的目的:
- 为问卷内容和逻辑开发一个开源的标记语言.
- 为实时测试和可视化问卷逻辑创建工具.
- 改善流行病学问卷的开发,共享和重复使用.
主要方法:
- 开发了"Quest",这是一个开源的问卷标记语言.
- 创建了一个实时的浏览器内染器,用于测试逻辑 (例如跳过模式).
- 构建了一个问卷开发工具和一个嵌入染器的示例web应用程序.
主要成果:
- 科斯特标记语言以纯文本指定了问卷的内容和逻辑.
- 实时染器允许用户测试逻辑和查看数据收集结构.
- 一个示例的Web应用程序展示了染器的整合,用于癌症预防研究的连接.
结论:
- 通过Quest,可以将问卷存储和共享为标准的纯文本格式.
- 这种标记语言通过增强可重复使用性和互操作性来促进流行病学中的FAIR数据原则.
- "Quest"是朝着标准化,开源的流行病学数据收集工具迈出的重要一步.
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