盲人和聋人参与者在"我们所有人"研究计划中的代表性不足
Colby Lewis V1, Jack Huebner2, George Hripcsak3
1Mailman School of Public Health, Columbia University, New York, NY, USA.
Nature medicine
|October 26, 2023
概括
盲人和聋人在我们所有人研究计划 (AoURP) 中代表性不足,特别是工作年龄的成年人和少数群体. 这限制了精准医学研究对这些服务不足的人群的好处.
科学领域:
- 卫生公平性健康公平性
- 精准医学是一门精准的医学.
- 生物医学研究的研究.
背景情况:
- 盲人和聋人群体面临着严重的健康差异.
- 边缘化社区经历了复杂的健康不平等.
- 纳入研究对于公平的健康效益至关重要.
研究的目的:
- 评估"我们所有人研究计划" (AoURP) 队列中盲人和聋人的代表性.
- 将AoURP参与者的人口统计数据与疾病控制和预防中心 (CDC) 的国家估计数据进行比较.
- 在AoURP中确定盲人和聋人群体的代表性差异.
主要方法:
- 分析了AoURP参与者数据 (2018-2023年),包括电子健康记录.
- 将AoURP队列人口统计数据与2018年CDC国家估计数据进行比较.
- 通过关键的人口特征和交叉因素来检查代表性.
主要成果:
- 在AoURP队列中,盲人和聋人人数明显不足.
- 在工作年龄的成年人 (65岁以下),亚洲人和多种族参与者中,代表人数不足明显.
- 在多种边缘化的交叉点观察到复合的不足代表性,特别是在教育程度低的黑人或非裔美国劳动年龄女性中.
结论:
- 盲人和聋人在AoURP中的代表性不足引起了人们对研究通用性的担忧.
- 调查结果强调,需要有针对性的战略,以改善在精准医学中代表性不足的群体的纳入.
- 确保多元化的代表性对于科学进步和所有人口的健康益处至关重要.
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