瑞典严重疾病对话指南的翻译,调整和验证
Sofia Andersson1,2,3, Lisa Granat1,2, Rebecca Baxter1,2,3
1Center for Collaborative Palliative Care, Linnaeus University, Växjö, Sweden.
Journal of palliative care
|October 27, 2023
概括
瑞典严重疾病对话指南适用于医疗保健环境,对患者,家庭和临床医生来说是有用和可接受的. 它支持促进健康的严重疾病讨论.
科学领域:
- 抚慰性护理是一种缓解性护理.
- 医学沟通 医学沟通
- 医疗保健服务研究 医疗服务研究
背景情况:
- 严重疾病对话对于将护理与患者价值观相协调至关重要.
- 现有的工具需要适应不同的医疗保健系统.
- 严重疾病对话指南 (SICG) 是一个广泛使用的框架.
研究的目的:
- 为瑞典医疗保健环境翻译和文化调整SICG.
- 评估瑞典SICG的有效性和可接受性.
- 评估它在促进严重疾病讨论方面的有用性.
主要方法:
- 使用患者,家庭成员和医疗保健专业人员的认知访谈,SICG的代翻译和适应.
- 三轮面试 (T1-3) 提供了信息,对指南进行了修订.
- 在与医生和护士的培训日进行试点测试.
主要成果:
- 瑞典SICG在支持严重疾病对话方面被发现是有用的.
- 临床医生指出,一些问题在情感上具有挑战性;明确的预后/时机问题被遗漏.
- 采用"希望最好,为最坏做好准备"的方法来探索未来的担忧.
结论:
- 患者,家庭和医疗保健专业人员认为瑞典SICG是适当的,敏感的和响应的.
- 经过调整的指南可能会促进一种更有利于健康的方法来沟通严重疾病.
- 需要进一步研究其对以人为中心和目标一致的护理的影响.
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