囊性纤维化多学科虚拟诊所对患者体验,时间承诺和成本的影响
Jody M Bell1,2, Tiffany J Dwyer1,2, Michelle Cunich2,3,4
1Department of Respiratory and Sleep Medicine, Royal Prince Alfred Hospital, Sydney, New South Wales, Australia.
Internal medicine journal
|October 27, 2023
概括
在囊性纤维化 (CF) 护理中的远程医疗视频会议与面对面的访问相比,提供了类似的患者体验和生活质量. 这种方法大大减少了旅行时间和成本,特别是对于区域患者来说,大多数人更喜欢混合模式.
科学领域:
- 肺部医学 肺部医学
- 医疗保健服务研究 医疗服务研究
- 数字健康数字健康
背景情况:
- 门诊护理经验在不同的患者人口统计学中可能有很大差异.
- 多学科护理对于管理复杂的疾病,如囊性纤维化 (CF),至关重要.
- 远程医疗的整合,特别是视频会议,为提供门诊护理提供了一种新的模式.
研究的目的:
- 通过远程医疗视频会议提供多学科门诊CF护理的成年患者经验,与传统的面对面护理进行前性评估和比较.
- 评估远程医疗对患者报告结果的影响,包括一般健康,心理健康和治疗计划的遵守.
- 确定不同群体患者体验的差异:区域,非区域/大都市,以及具有多抗性微生物群的群体.
主要方法:
- 采用前性研究设计,招募CF等待肺移植的患者.
- 患者报告的结果是在基线和12个月收集的,捕捉了面对面和远程医疗护理的经验.
- 分析包括基于居住和微生物殖民状态的三个不同的患者队列.
主要成果:
- 在医疗团队的患者评分,一般/精神健康,或在远程医疗和面对面的护理之间管理治疗的信心方面,没有发现显著差异.
- 囊性纤维化问卷 - 修订 (CFQ-R) 的得分没有显示组间的差异.
- 远程医疗显著减少了患者的旅行时间和相关成本,特别有利于区域地区的患者 (例如,每次诊所访问节省了4小时和108澳元).
结论:
- 这项试点研究表明,远程医疗视频会议为CF患者提供了与传统的面对面门诊护理相匹配的患者体验和生活质量.
- 实现了大量的时间和成本节省,特别是对于居住在区域地区的患者.
- 大多数参与者 (93%) 表示更喜欢继续使用混合型护理模式,将虚拟和实体访问相结合.
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