公众对基因测试和奥米克科学的态度,知识和教育需求:在意大利进行的一项试点调查
Giovanna Elisa Calabrò1, Francesco Andrea Causio1, Denise Pires Marafon1
1Section of Hygiene, Department of Life Sciences and Public Health, Università Cattolica del Sacro Cuore, Rome, Italy.
European journal of public health
|October 27, 2023
概括
意大利公民对基因测试表现出高度兴趣,但缺乏知识. 教育工具对于改善公众对基因组学和基因测试风险的理解至关重要,以便为明智的健康决策做出决定.
科学领域:
- 公共卫生基因组学
- 生物伦理学生物伦理学
- 科学传播科学传播
背景情况:
- 基因组学的进步需要公众的理解,以便做出明智的健康决策.
- 现有的文献评论和专家调查强调了对基因组学公共教育的需要.
- 公共卫生领域的意大利基因组学网络发现了公民识字方面的差距.
研究的目的:
- 评估意大利公民的态度,知识和教育需求,与遗传测试和奥米克科学有关.
- 确定公众对基因组学缺乏理解的特定领域.
- 为制定有针对性的教育干预措施提供信息.
主要方法:
- 对意大利公民进行的试点调查.
- 数据收集基于两个先前的文献评论的发现.
- 通过对意大利公共卫生基因组学网络专家的调查提供信息.
主要成果:
- 观察到广泛的公民对遗传测试的兴趣.
- 确定了有关基因测试风险的重大不确定性和知识差距.
- 99%的参与者报告说,他们对基因测试的知识不足.
结论:
- 迫切需要有效的教育工具来提高公众对基因组学的知识.
- 提高公民对基因测试和奥米克科学的参与度至关重要.
- 解决知识差距将使公民能够做出明智的健康决策.
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