行为困境和自我管理的支持要求中国青少年在过渡准备期间:一项混合方法研究
Cui Cui1, Hengyu Zhou2, Wenjin Chen3
1Department of Nursing Children's Hospital of Chongqing Medical University, National Clinical Research Center for Child Health and Disorders, Ministry of Education Key Laboratory of Child Development and Disorders, Chongqing, People's Republic of China.
Patient preference and adherence
|October 31, 2023
概括
患有的中国青少年 (AWE) 的自我管理和过渡准备能力较低. 复杂的因素影响他们的行为,突出需要改进的支持策略.
科学领域:
- 儿科神经学 儿科神经学
- 青少年健康 青少年健康
- 行为科学 行为科学
背景情况:
- 的自我管理对于青少年过渡到成年至关重要.
- 过渡准备和适当的支持对于有效管理至关重要.
- 了解行为困境和支持需求对于AWE来说至关重要.
研究的目的:
- 探索青少年自理中的行为困境.
- 确定在过渡期患有的青少年的支持需求.
- 描述性青少年自我管理的特点.
主要方法:
- 一项融合混合方法研究,涉及中国654名患有的青少年和17名患者护理人员.
- 通过关于人口统计,疾病特征,过渡准备,自我管理和社会支持的问卷收集的定量数据.
- 通过同步采访患者和家庭护理人员收集的定性数据.
主要成果:
- AWEs表现出较低的自我管理和过渡准备能力,社会支持适度.
- 多变量分析确定年龄,抗药类型,并发症,家庭结构,过渡准备和社会支持作为重要因素 (p<0.05).
- 定性分析揭示了七个主题的自我管理困境和11个主题的支持需求,导致一个概念模型.
结论:
- 目前,中国AWE的自我管理行为状态不足于最佳水平.
- 影响AWE自主管理的因素是复杂而系统的.
- 结果提供了洞察力,以加强AWE的自我管理和过渡准备战略.
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