开发一套以患者为中心的结果,用于子宫内膜异位症的常规使用:国际Delphi研究
Alba Nicolas-Boluda1,2, Enora Le Roux3,4, Arounie Tavenet5
1One Clinic, Paris, France.
Acta obstetricia et gynecologica Scandinavica
|October 31, 2023
概括
这项研究确定了对子宫内膜异位症护理的关键以患者为中心的结果. 这些措施旨在标准化治疗监测,改善患者的生活质量.
科学领域:
- 妇科 妇科医生 妇科
- 患者报告的结果
- 临床实践指南 临床实践指南
背景情况:
- 在不同患者之间,子宫内膜异位症的护理有很大差异.
- 标准化结果措施可以个性化治疗,提高护理质量.
- 确定普遍相关的以患者为中心的结果对于日常的子宫内膜异位症管理至关重要.
研究的目的:
- 建立一套以患者为中心的核心结果,用于常规的子宫内膜异位症护理.
- 确保结果与各种患者个人资料相关.
- 为了促进个性化治疗监测和改善患者的整体福祉.
主要方法:
- 一项经过修改的两轮Delphi研究涉及51名国际专家,包括医疗保健专业人员,研究人员和患者代表.
- 参与者评估了47个患者报告结果指标 (PROM) 和30个临床医生报告结果指标 (CROM) 在日常护理中的可行性和相关性.
- 在德尔菲轮之后,通过专门的会议最终确定了专家的共识.
主要成果:
- 建立了六个PROM (症状影响,疼痛,工作生产力,生活质量) 和10个CROM (临床,成像,手术指标) 的最终组.
- 一个补充列表捕获了对一些患者而不是所有患者至关重要的结果.
- 确定需要新的PROM来解决心理和性影响.
结论:
- 已经制定了一套基于共识的以患者为中心的子宫内膜异位症结局措施.
- 这些措施捕捉了所有子宫内膜异位症患者相关的共同元素.
- 结果适用于常规的临床实践,允许根据特定需求选择临床医生.
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