叙事医学指出在帕金森病中失去自主权和耻辱感
Barend W Florijn1,2,3, Raoul Kloppenborg4, Ad A Kaptein5
1Department of Neurology, Leiden University Medical Center, Leiden, the Netherlands. b.w.florijn@lumc.nl.
NPJ Parkinson's disease
|November 2, 2023
概括
帕金森病的叙述揭示了失去自主权和耻辱的隐喻. 叙事医学可以改善患者的自主权,并减少帕金森病护理中的耻辱.
科学领域:
- 神经学 神经学
- 医学人文学科 医学人文学科
- 心理学 心理学 心理学
背景情况:
- 帕金森病 (PD) 与自我认知的耻辱和自主权的减少有关.
- 通过叙事来理解患者的经历对于有效的护理至关重要.
研究的目的:
- 调查帕金森病叙述中失去自主权和耻辱的隐喻.
- 探索这些叙述如何影响患者体验和治疗决策.
主要方法:
- 对当代PD疾病叙述和绘图进行比较分析.
- 在选定的小说,图形小说和非虚构作品中对比喻的审查.
- 在不同的叙事形式中识别共同的主题和分类.
主要成果:
- PD的比喻揭示了极端的经历,比如"偶然的跌倒"和"无底的黑暗".
- 小说强调"背叛和脱节",而非小说描绘了"被囚禁和被剥夺"的感觉.
- 这些叙述可以被描述为"混乱故事",可能会影响治疗的开始和坚持.
结论:
- 叙事医学可以通过专注于以患者为中心的问题来增强医疗咨询.
- 解决患者叙述改善了自我认知的自主性,并减少了帕金森病的耻辱感.
- 叙事方法对于帕金森病护理中的个性化医学至关重要.
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